Thank you for contacting me about motor neurone disease.
MND is such a cruel and devastating condition–and we are unrelenting in our commitment to support both the people living with this condition, and the brilliant minds across Britain who are working in the hope it can become treatable–and one day even curable.
That’s why we have committed least £50 million to support MND research over2022-2027,as part of a package of £375 million for research into neurodegenerative diseases. More than £35 million of the £50million pledged to cutting-edge MND research has already been allocated, and work continues at pace to support MND researchers in submitting high-quality bids for open funding calls. To support people living with MND, the NHS commissions specialised services, including the provision of multi-disciplinary care from specialist clinicians, such as neurologists, specialist nurses, speech and language therapists, dietetics and nutrition support, and physiotherapy, depending on individual clinical need.
In addition, the NHS commissions a specialised communication aid service known as Augmentative and Alternative Communication, as set out in the published service specification. This service supports and prioritises individuals with rapidly degenerative conditions, including MND. We want the UK to lead the way in helping find new and effective treatment for those people who are living with this debilitating disease.
We know we are not there yet, but we will find a cure and we are doing everything we can to make it happen.